I used to love to walk, and my ability to do so has been compromised by spending so much time indoors trying to avoid being infected. I am immune-compromised from taking Ibrance, and have been hospitalised 2 times with serious infections during the past year, despite taking all precautions. I have gained the "Covid-19," as we call it locally, from staying mostly indoors since the first week of March 2020. (I switched oncologist's prior to any initial treatment).Īnd, have others switched to CT scans only following a history of PET/CT scans? My oncologist said she typically doesn't order PET/CT scans unless the patient had started with these initially.as did I. However, my oncologist indicates that a CT scan shows better visibility for those w breast cancer. Plus, the radiology department is the home to some of my own personal clients (I consult on a highly specialized insurance product).Īside from the personal aspect, I've always heard/been told that a PET/CT scan is much more comprehensive than a CT scan. Too, on a personal level, I very much appreciate being able to pick up my report the same day. I'm not sure I feel comfortable with this. My Oncologist has now suggested that, moving forward, I switch to CT scans given my insurance will pay. My new 2017 insurance carrier wouldn't agree to pay for my latest scan in Feb so I am paying out of pocket (flat fee of $1500 here in Indianapolis). Since, I've had follow-ups PET/CT scans ~ every 4-5 months with my latest Feb/2017. However, 'm a bit confused.I had my first of 5 PET/CT scans back in late Oct/2015. I am tolerating both extremely well with no significant side effects but for weight gain. Several multiple lymph nodes + left internal mammary chain showed activity.Ĭurrent treatment: Letrozole + Ibrance (100 mg). ![]() I still have insomnia but it's different and not as severe as the past regime.So I'd love to know if anyone else has experience with low-dose tam?MBS, state 4 denova, mets to bone, PALB2 mutation, tumor attached to chest wall.Īt age 60, I was diagnosed de nuvo Stage IV in Oct 2015 w mets to the iliac bone. This dosage gives me little to no side effects, and I still feel like myself again-no anxiety, no water weight gain, no painful leg cramps, no horrible acid indigestion, no warm or hot flashes, no vertigo,only minor fatigue after a trying day. So I just took a three month break (gradually felt great) and decided afterwards to go on low-dose tamoxifen. The final study in the Ibrance series showed it failed (POS) end point to extend life compared to placebo. I was always terrified of what I had heard about tamoxifen side effects but after 14 months on letrozole and Ibrance just had zero quality of life. I am curious if anyone has taken low dose tamoxifen after being unable to tolerate letrozole and palbociclib side effects.
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